Session Information
04 SES 11 B, The Past, Present, and Future of Families and Disability: The Influence of Disability Studies on European and North American Research
Symposium
Contribution
The paper presents a comparative analysis of Nordic research by/on/with parents of disabled children over the past 35 years. The Nordic countries share similar welfare legislation related to families and disability and similarities in culture and values. As forerunners to Disability Studies, social reform movements (e.g. “normalisation”, human rights and disability advocacy) had their earliest emergence in Denmark (Kirkebæk, 2001), and Sweden (Nirje 1969) in the late 1950s and 60s. The other Nordic countries soon followed (Norway, Iceland and Finland) in the 1960s and 70s. The resulting changes in concepts, policies and supports had a dramatic effect on how Nordic families experienced disability. Since the 1990s, Disability Studies has gained a foothold in academic settings, gradually developing influence in both research and pedagogy (Tideman & Tössebro 1996; Gustavsson, Tössebro & Traustadóttir 2005). Within this evolving context of policy and research, the support systems in Nordic countries have engaged families in varying ways and at different rates of change (Bjarnason 2010; Ingólfsdóttir & Traustadóttir, 2010). The paper focuses on analysing similarities and differences of parent- professional relations as they have evolved over time from the perspectives of families. The paper finally asks where research including family narratives may be leading us.
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