The Implications of Medicalization on the Quality of Life Experiences of Children and Adolescents at School
Author(s):
Conference:
ECER 2014
Format:
Paper

Session Information

25 SES 05, Children's Rights and Additional Support Needs

Paper Session

Time:
2014-09-03
11:00-12:30
Room:
B034 Anfiteatro
Chair:
Vicki Coppock

Contribution

Currently, national and international scenario reveals strong investments in the education field. Despite the expansion of equity and fairness principles, there are a lot of barriers that tend to constrain the quality of children and adolescents’ experiences at school (Macleod, 2010). This paper focuses on one of these obstacles: medicalization.

In spite of the diversity of medicalization definitions and its historical reformulations over the last decades, the term medicalization refers to “a process by which ‘non-medical’ (or ‘life’ or ‘human’) problems become understood and treated as ‘medical’ problems” (Parens, 2013: 28). As Conrad (1992) highlights medicalization consists of defining a problem in medical terms, using medical language to describe it, adopting a medical framework to understand it, or using a medical intervention to ‘treat’ it. In fact this is a process that may or may not involve a medical profession and it is not new (Maturo, 2012).

The medicalization thesis emerged from the work of sociologists of the 1930s to 1950s (K. Davis, W. Mills, T. Parsons) who linked social control to an increasing dominance of medicine over individual and social problems. Irving Zola was one of the first to use the term but it was when Ivan Illich published Medical Nemesis in 1975 and Limits to Medicine in 1976 that ‘the medicalization of life’ thesis came out from academic to popular discourse (Petrina, 2006).

Besides the discourses, the way behaviours are considered problematic and the diagnosis underlying them reflect drugs’ solutions unavoidably results in the assumption that children/adolescents do not fit properly in the institutions in which they move in, particularly school. This perspective tends to reinforce teachers and educational administrators’ beliefs that these children/adolescents’ problems are not their problem but a problem in the students’ brains (Lopes, 2012). Thus we assist to several practices of diagnosing such as dyslexia in children/adolescents with reading difficulties, hyperactivity in other whose behaviours tend to be deviant from the normative and so on. But this phenomenon is not restricted to the school setting. Rather, “educators ought to understand that a process of medicating kids for school is completely interdependent with a complex of psychotherapeutic practices and historical contingences” (Petrina, 2006: 531).

The main consequences of this trend are the individualization of social problems and the depoliticization of health policy (Maturo, 2012). As Kvaale, Haslam & Gottdiener (2013:783) refer “a sense of being different and defective can be internalized, undermining emotional well-being, self-esteem, and hope”. Still, even more than judge good and bad forms of medicalization this paper aims understanding the dynamics it involves, the contexts where it occurs and the agents it implicates. Therefore, the recognition of the intentions which lie behind this phenomenon - without neglecting its enrolment in a sphere that is inevitably political and sociocultural - is the main objective.

Another essential point of this work is to admit the experience at school and, moreover, the life experience of children and adolescents into medicalization processes as a collective issue. Therefore considering not just these children/adolescents and their families, public contexts should be regarded as active partners in the construction of an equal society (Lear, 2007). It is clearly a matter of framing this issue in a rights paradigm that more than emphasizing needs assumes that promoting health and fair living conditions is a responsibility of all. The idea of placing this issue about medicalization in a public dimension refers implicitly to a question of citizenship. Thus, this study highlights the importance of recognizing children and adolescents with their specificities as citizens who should be treated differently so that their needs are met (Stainton, 2005; Barnes, 2007).

Method

Considering that medicalization “refers to a process whereby nonmedical problems are defined and treated as medical problems” (Petrina, 2006: 504) this study aims to understand what causes this type of diagnosis. Moreover comprehending the consequences of medicalization is also an essential point. As a result this paper explores the life experiences of children and adolescents with diagnosis of chronic disease and their main difficulties and strategies at school. It focuses on the role of schools in Portugal as contexts that clearly appear in daily experiences of chronic illness children and adolescents. Furthermore the relationship between school, family and other social institutions will be taken into account, based on a qualitative methodology. In fact there are countless redundancies across different social practices in the “psychiatric society”, “therapeutic state”, “medicalization of life”, or what Cohen called the “triumph of the therapeutic” (Petrina, 2006). In this sense this paper also intends to promote a plural discussion about the issues that underlie this phenomenon. Therefore, recognizing current discrimination situations and multiple barriers that these children and adolescents face to, this paper includes semi-structured interviews with students, parents and school teachers from the North of Portugal. Students were between 10 and 16 years old. Ethical issues were assured to all participants. Interviews were recorded and data processing was made by content analysis.

Expected Outcomes

It is expectable that the results will enable a better understanding about daily experiences of children and adolescents with diagnosis of chronic disease, concerning to the various barriers they find and the alternatives that exist to handle. We hope that the results allow a deeper comprehension of the needs and resources of these students and their families regarding multiple contexts and domains that might foster their inclusion and the promotion of their well-being and participation (Menezes, 2007). In this sense, we expect that our emphasis on the social model (instead of the medical model) attending to the empowerment and rights of these people will encourage a vision of this issue as a challenge (rather than a limitation) to the quality of life within the public institution (Barnes, 2007; Rappaport, 1981). So that, we also expect to be able to identify the resources that educational agents provide in order to promote these students’ academic performance, social integration and personal development. It is also expected that this paper strengths a reflection about the educational, familiar, social … implications that emerge from the process of medicalization. Additionally, is our aim to present some suggestions to an alternative discourse about possible reconfigurations into health and health policies in Portugal.

References

Conrad, P. (1992). Medicalization and social control. Annual Review of Sociology, 18, 209-232. Barnes, C. (2007). Disability activism and the struggle for change: disability, policy and politics in the UK. Education, Citizenship and Social Justice, 2, 203-221. Kvaale, E; Haslam, N & Gottdiener, W. (2013). The ‘side effects’ of medicalization: A meta-analytic review of how biogenetic explanations affect stigma. Clinical Psychology Review, 33, 183-194. Lear, J. G. (2007). Health at school: a hidden health care system emerges from the shadows. Health at school, 26 (2), 409-419. Lopes, J. (2012). Biologising reading problems: the specific case of dyslexia. Contemporary Social Science: Journal of the Academy of Social Sciences, 7 (2), 215-229. Macleod, G. (2010). Identifying obstacles to a multidisciplinary understanding of ‘disruptive’ behavior. Emotional and Behaviour Difficulties, 15 (2), 95-109. Maturo, A. (2012). Medicalization: Current concept and future directions in a bionic society. Sociology and Biomedicine, 10, 122-133. Menezes, I. (2007). Intervenção Comunitária. Uma Perspectiva Psicológica. Porto: Livpsic. Parens, E. (2013). On good and bad forms of medicalization. Bioethics, 2 (1), 28-35. Petrina, S. (2006). The medicalization of education: A historiographic synthesis. History of Education Quarterly, 46 (4), 392-531. Rappaport, J. (1981). In praise of paradox: a social policy of empowerment over prevention. American Journal of Community Psychology, 9 (1), 1-25. Stainton, T. (2005). Empowerment and the architecture of rights based social policy. Journal of Intellectual Disabilities, 9, 289-298.

Author Information

Sofia Castanheira Pais (presenting / submitting)
Centre for Social Studies - Associate Laboratory, Coimbra University
Coimbra
Centre for Social Studies - Associate Laboratory, Coimbra University, Portugal

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