Session Information
ERG SES C 09, Children and Education
Paper Session
Contribution
In a time of transition for educational research, it becomes fundamental to cross boundaries and to approach areas that have been seen as “antagonists”: education sciences and health sciences. It is our aim to congregate these areas’ contributions towards our subject of study. The doctoral project we are developing is framed within Education Sciences, specifically Deaf Studies and Deaf Education.
Our general focus is cochlear implantation in prelingually deaf children, their (re)habilitation and education, this implying to approach the periods before and after the surgery.
According to Senghas and Monaghan (2002:70) “[p]relingual deafness refers to deafness that occurs prior to the individual’s acquisition of a first language and includes deafness at birth through 3 years”. This type of deafness, whether from birth or acquired, implies that children are deprived from hearing in a critical time for linguistic acquisition. Therefore, other ways than vocal or sound stimulation may be needed so that children can develop linguistic competences. This leads us to linguistic issues related to sign language and, further, the bilingual education for deaf.
Last decades’ technological development brought cochlear implants (CI) and other hearing aids which goal is to enable or restore deaf people’s hearing. Considered by some as an important medical and technological progress for the treatment of deafness as a hearing impairment, the CI is also seen as a new element of oppression of the Deaf Community, as a cultural and linguistic minority, that for centuries fought against oralist educational practices and policies.
Therefore, a great controversy emerges concerning deaf children implantation. Since the beginning of the 90’s, more and more babies have become implanted in Portugal and in other countries all over the world. Currently, in a worldwide perspective, babies with less than 12 months age are implanted and the numbers of implantation – from children to adults – raise above 200 000 people. The CI came to be seen as a kind “miracle restoring hearing to deaf children” (Hyde, Punch, & Komesaroff, 2010), not only by health professionals, but also by parents. This fits the medical model of deafness (Ladd, 2005; Lane, 2005; Senghas & Monaghan, 2002).
Although cochlear implantation has gradually become widespread and more accepted (even within Deaf Communities) some issues are still in discussion, as: ethical and moral issues around parents’ decision for cochlear implantation; cultural aspects involved in educational, linguistic and communicational choices for the children. Notwithstanding, other aspects remain obscure in the debates: funding of cochlear implantation by the national health systems; type of information and support given to parents before and after implantation; constitution of medical, rehabilitation and educational teams involved in implantation and follow-up; educational options for those children; implications of CI throughout the implanted person and its family lives. These are some issues we intend to approach and develop in our project, in order to know better our national reality and also to contribute to the international scientific literature about cochlear implants.
It is important to indicate that our perspective of deafness is framed within a socioantropological or sociocultural model of deafness (Bisol & Sperb, 2010; Emery 2009). This model sees deafness as a relationship and the deaf person is not seen as someone who possesses a handicap or a deficit. Our perspective is that deafness is a biological characteristic of human variability manifested through the sensory deprivation of hearing, but not a deficit or an abnormality. We also support the idea that sign language should be the first language of deaf people (Coelho, Amorim, & Mendes, 2012) and that bilingual education is, perhaps, the most reasonable proposal for deaf children, whether users or not of cochlear implants.
Method
Expected Outcomes
References
Archbold, Sue, & O’Donoghue, Gerard M. (2007). Ensuring the long-term use of cochlear implants in children: The importance of engaging local resources and expertise. Ear & Hearing, 28(2 Supp), 3S-6S. Archbold, Sue, Sach, Tracey, O’Neill, Ciaran, Lutman, Mark, & Gregory, Susan (2006). Deciding to have a cochlear implant and subsequent after-care: Parental perspectives. Deafness and Education International, 8(4), 190-206. Bisol, Cláudia, & Sperb, Tania Mara (2010). Discursos sobre a Surdez: Deficiência, Diferença, Singularidade e Construção de Sentido. Psicologia: Teoria e Pesquisa, 26 (1), 7-13. Christiansen, John B., & Leigh, Irene (2004). Children with cochlear implants: Changing parent and deaf community perspectives. Archives of Otolaryngology – Head & Neck Surgery, 130, 673-677. Coelho, Orquídea, Amorim, Cândida, & Mendes, Bruno (2012). Crianças surdas profundas, implante coclear e educação bilingue: desafios e procedimentos em Portugal. In Alain Battegay, Orquídea Coelho, & Henrique Vaz (Coords.), Tiago Araújo, & Bruno Mendes (Cols.), Prendre soin, prendre part, vivre avec: Enjeux et défis de la citoyenneté profane dans les rapports santé-société. Quelles médiations? / Cuidar, tomar parte, viver com: questões e desafios da cidadania profana na relação saúde/sociedade. Que mediações? (pp. 121-142). Porto: Livpsic. De Raeve, Leo (2010). Education and rehabilitation of deaf children with cochlear implants: A multidisciplinary task. Cochlear Implants International, 11(1), 7-14. Emery, Steven D. (2009). In space no one can see you waving your hands: making citizenship meaningful to Deaf worlds. Citizenship Studies, 13(1), 31-44. Gonsoulin, Thomas P. (2001). Cochlear implant/Deaf World dispute: Different bottom elephants. Otolaryngology – Head and Neck Surgery, 125(5), 552-556. Hardonk, Stefan, Bosteels, Sigrid, Desnerek, Greetje, Loots, Gerrit, Van Hove, Geert, Van Kerschaver, Erwin, Vanroelen, Christophe, & Louckx, Fred (2010). Pediatric cochlear implantation: A qualitative study of parental decision-making processes in Flanders, Belgium. American Annals of the Deaf, 155(3), 339-352. Hyde, Merv, Punch, Renée, & Komesaroff, Linda (2010). Coming to a decision about cochlear implantation: Parents making choices for their deaf children. Journal of Deaf Studies and Deaf Education, 15(2), 162-178. Ladd, Paddy (2005). Deafhood: A concept stressing possibilities, not deficits. Scandinavian Journal of Public Health, 33(Suppl 66), 12–17. Lane, Harlan (2005). Ethnicity, Ethics, and the Deaf-World. Journal of Deaf Studies and Deaf Education,10(3), 291-310. Sach, Tracey H., & Whynes, David K. (2005). Paediatric cochlear implantation: the views of parents. International Journal of Audiology, 44, 400-407. Wheeler, Alexandra, Archbold, Sue, Hardie, Tim, & Watson, Linda (2009). Children with cochlear implants: The communication journey. Cochlear Implants International, 10(1), 41-62.
Search the ECER Programme
- Search for keywords and phrases in "Text Search"
- Restrict in which part of the abstracts to search in "Where to search"
- Search for authors and in the respective field.
- For planning your conference attendance you may want to use the conference app, which will be issued some weeks before the conference
- If you are a session chair, best look up your chairing duties in the conference system (Conftool) or the app.