The Experiences of Inclusion for Pupils with Autistic Spectrum Disorders (ASD) in Mainstream Primary Schools- The Voice of Parents.
Author(s):
Colin McElroy (presenting / submitting)
Conference:
ECER 2016
Format:
Paper

Session Information

ERG SES E 08, Special Education

Paper Session

Time:
2016-08-22
15:30-17:00
Room:
OB-E0.01
Chair:
Javier Diez-Palomar

Contribution

The current national and international trend of inclusive schooling has resulted in the proliferation of pupils with autistic spectrum disorders (ASD) attending mainstream schools. Inclusion is defined by UNESCO (2005) as a process concerned with the identification and removal of barriers to education. UNESCO advocates a rights based approach to education, based upon the principles of equality, inclusion and access to free, quality education in terms of content and processes.  Recent research has questioned the effectiveness of inclusion and highlighted many barriers to inclusion being achieved. Definitional inconsistencies and varied outcomes have led to inclusion becoming a highly contested and complex concept in many countries (Allan, 2010; Ferguson, 2008; Graham & Slee, 2007).  Despite many policy developments and subsequent legislation addressing inclusive education, inclusive practices have failed to become firmly embedded in Irish schools.  The belief that pupils with special educational needs (SEN) will benefit from their inclusion in mainstream schools has been challenged, as issues and challenges surrounding the benefits of inclusive policies on the academic and social outcomes for pupils with SEN still remain (McCoy & Banks, 2012).

In Ireland, parents are recognised as the primary educators of their children (Ireland, 1937).  The important role of parents in the education of their children with SEN has been acknowledged in successive policy documents and statements published in recent years. (EPSEN Act, 2004; NCSE, 2015; UNESCO, 1994).

This research describes the attitudes and experiences of mainstream schooling for pupils on the ASD spectrum and relevant stakeholders.  In total, 134 stakeholders participated in the school-based data collection phases (3-7) from January 2013 to September 2015.  Three data sets were purposively sampled to carry out the research aims and objectives.  The first data set consisted of parents that were recruited from an online posting on autism support websites, requesting suitable candidates to participate during phase 1 of this research.  The pilot study was conducted in Phase 2.  The second data set consisted of eight mainstream primary schools in Leinster with access to an ASD special class.  These schools completed questionnaires in phase three.  Four schools were then selected for in-depth analysis in the subsequent phases of the research. A multiple embedded case study describes the experiences of inclusion for thirteen primary pupils with ASD across four primary schools (Yin, 2009).  This research centred around the following research questions:

  1. What are the attitudes to and experiences of inclusion for pupils with ASD attending mainstream primary school and relevant stakeholders?
  2. What facilitates inclusive practices in school?
  3. What are the challenges or barriers to inclusive practices in school?
  4. What are the experiences of transition and transfer?
  5. What is the evidence of best practice in the case study schools?
  6. Can you design your 'ideal school' for pupils with ASD?

This research is underpinned by constructivist principles that inform and  guide the research design, the chosen methods of data collection, data analysis procedures and the recording and presentation of research findings.  There is no single, absolute truth, as this research acknowledges the multiple realities that can be experienced by various pupils with ASD in their respective school environments (Denzin & Lincoln, 2011). The parsimonious Bronfenbrenner Model (1994) provides a suitable theoretical framework to investigate the processes of teaching, learning and transition, and to describe the various levels of engagement and participation experienced by pupils with ASD at different phases of their schooling. These processes are analysed within the context of each school, community and home environment.  The triangulated viewpoints of case study participants will give greater insights to the attitudes and experiences of inclusion for pupils with ASD and relevant stakeholders.

Method

Methods used in this research included questionnaires, interviews, documentation and visual stimuli. A case study database was devised for all participants to provide a systematic way of recording and collating all data collected in this research. The database was regularly updated throughout this research and incorporated the use of case study notes, documents, tabular materials and narratives (Yin, 2009). Triangulation is used in this research in "an attempt to secure an in-depth understanding of the phenomenon in question" (Denzin & Lincoln, 2011, p.5). Seventy-four self-administered questionnaires were used in this research to establish an overview of stakeholders' attitudes to their experiences of inclusion in mainstream schools. Questionnaires were adapted to suit the needs of the pupils participating in this study. The layout and design of the questionnaire incorporated the use of colour, pictures and graphics to make it more attractive for pupils to complete (Booth & Ainscow, 2011). Feedback received provided excellent baseline data that guided subsequent research phases (Miles and Huberman, 1994). All of the questionnaires were coded to generate themes and to maintain the anonymity and privacy of participants (Braun & Clark, 2006). Forty semi-structured interviews were utilised to elicit more in-depth information regarding stakeholders' experiences of inclusion. Kvale & Brinkmann (2009) outline the seven stages of an interview inquiry. These guided the overall data collection, analysis, recordings and overall presentation of the research findings. An interview guide containing a list of question areas that needed to be discussed in the interview was used. A guided conversation enabled each research participant to speak openly on their experiences of inclusion in their respective schools (Lofland & Lofland, 1995; Yin, 2009). At the end of each interview, each participant was asked to describe or draw 'My Ideal School' for pupils with ASD (Burke & Grosvenor, 2003). The aim here was to provide a rich, detailed description of stakeholders' ideal school for pupils with ASD. The concluding phase of this research comprised of three focus groups with ten parents. Ongoing feedback from parents highlighted a change in attitudes to inclusion as children progressed through school. Documentary evidence used in this study included a review of policies in each school relating to SEN, ASD special classes, admissions and enrolment. School websites were also analysed. Information received during this phase was also used to inform and guide subsequent phases of this research.

Expected Outcomes

This paper will present findings based upon feedback received from parents through ongoing discussions, questionnaires, interviews, focus groups and documentary analysis conducted throughout this research. Findings from this research centre around the themes of policy, provision, experience and outcomes for pupils with ASD (Project IRIS, NCSE, 2015). Furthermore, a number of sub-themes highlighted by parents will form the basis for this presentation at ECER 2016. Areas of best practice in case study schools will also be identified and discussed. The investigation and analysis of parental attitudes towards inclusion and ASD signifies their central importance in the overall processes of inclusion and this is widely supported in the literature. This research aims to improve the educational and social outcomes and lifelong opportunities and experiences for pupils with ASD, by producing an empirical evidence base that can inform future policy and practice. The publication of this research will raise awareness of ASD across all sections of society, by highlighting the experiences of inclusion and describing the challenges all stakeholders encounter on a daily basis. This research will also add to the literature on inclusion and ASD, emphasising the importance of eliciting the viewpoints of key stakeholders that were historically on the margins of society. In addition, this research will contribute to the national and international debate on what constitutes best practice in education for pupils with ASD, in an attempt to improve the outcomes and educational provision for pupils with ASD in the future. It will be the researcher's intention to disseminate findings from this study through publications, conference papers and poster presentations. It is expected that the findings from this research will contribute new knowledge in this field, as the literature suggests very little empirical evidence is currently known on best practice provision for pupils with ASD in an Irish context.

References

Ainscow, M. (2014) From Special Education to Effective Schools for All: Widening the Agenda. In. L. Florian (Ed.). The SAGE Handbook of Special Education 2nd Edition volume 1 (171-186). Thousand Oaks, California: Sage. Beresford, B., Tozer, R., Rabiee, P., & Sloper, P. (2007). Desired Outcomes for Children and Adolescents with Autistic Spectrum Disorders. Children & Society, 21, 4-16. Booth, T. & Ainscow, M. (2011). Index for Inclusion. Developing learning and participation in schools. Bristol: CSIE. Booth, T. and Ainscow, M. (1998). From Them to Us: An international study of inclusion in education. London: Routledge. Denzin, N.K. & Lincoln, Y.S. (Eds.). (2011). The SAGE Handbook of Qualitative Research (4th ed.). Thousand Oaks, California: Sage. Frederickson, N., Jones, A.P. & Lang, J. (2010). "Inclusive provision options for pupils on the autistic spectrum." Journal of Research in Special Educational Needs 10(2): 63-73. Guldberg, K. (2010). "Educating children on the autism spectrum: preconditions for inclusion and notions of 'best autism practice' in the early years." British Journal of Special Education, 37(4): 168-174. Hodkinson, A. (2010). Inclusive and special education in the English educational system: historical perspectives, recent developments and future challenges." British Journal of Special Education, 37(2): 61-67. Humphrey, N. (2008). Including pupils with autistic spectrum disorders in mainstream schools. Support for Learning, 23(1), 41-47. Jones, G., English, A., Guldberg, K., Jordan, R., Richardson, P., & Waltz, M. (2008). Educational provision for children and young people on the autism spectrum living in England. London: AET. McCoy, S. & Banks, J. (2012). Simply academic? Why children with special educational needs don't like school. European Journal of Special Needs Education, vol.27, no.1, pp.81-97. Miles, M.B. & Huberman, A.M. (1994). Qualitative Data Analysis (2nd ed.). Thousand Oaks, California: Sage. Parsons, S., Guldberg, K., MacLeod, A., and Jones, G. (2009). International review of the literature of evidence of best practice provision in the education of persons with autistic spectrum disorders. Dublin: NCSE Rose, R., Shevlin, M., Winter, E. & O’Raw, P. (2010). Special and inclusive education in the Republic of Ireland: reviewing the literature from 2000 to 2009. European Journal of Special Needs Education, vol.25, no.4 , pp.47-63. Slee, R. (2001). "'Inclusion in Practice': does practice make perfect?" Educational Review, 53(2): 113-123. Warnock, M. (2010) Special Educational Needs: A New Look. In: Terzi, L. (ed.) Special Educational Needs A New Look. London: Continuum, pp.11-45. Yin, R.K. (2003). Case Study Research (3rd ed.). Thousand Oaks, California: Sage.

Author Information

Colin McElroy (presenting / submitting)
Trinity College Dublin
School of Education
Co. Meath

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